“I’m sick of the things I do when I’m nervous, like cleaning the oven or checking my tires. Or counting the number of tiles in the ceiling. Head for the hills, the kitchen’s on fire! I used to rely on self-medication. I guess I still do that from time to time. But I’m getting better at fighting the future. ‘Someday you’ll be fine.’ Yes, I’ll be just fine.” –Motion City Soundtrack, “Everything Is Alright”
Trigger warning: Mental health, Obsessive-compulsive disorder
I haven’t written anything on this blog for a very long time, but after decades of suffering with obsessive-compulsive disorder (OCD), I think this particular one is a long time coming. It’s not something that is ever really easy to talk about, especially when there’s still so much stigma around most mental illnesses. However, I think that’s all the more reason to talk about something – to increase awareness and understanding and try to decrease stigma. You can’t get rid of stigma if you contribute to it by avoiding it, right? OCD is such a massive part of my everyday life and who I am that I think it’s something that I need to be more open about. A lot of people know I’m neurotic, but they don’t know the extent of it because I have only given glimpses into some things before. I’ve seen some public figures talking about it more recently, which is helpful to both raise awareness and to make those of us with it feel less alone. People have come to learn a lot more about autism and attention deficit hyperactivity disorder in recent years, but most people don’t know as much about OCD unless they have firsthand experience with it or are very close to someone who has it. You still constantly hear people making jokes about it, like “I love to clean! I’m so OCD!” There are many reasons comments like that are annoying (apart from being grammatically incorrect), but I think most people with OCD would agree that the worst is how it makes light of what is actually a very debilitating condition. I hope that by sharing my experiences with OCD, people will have a better understanding of how it’s more than just ‘liking to clean.’ (Worth noting that I hate cleaning and only do it because my stupid brain tells me I have to – and my place is clean but messy!) I also hope it will give people a better understanding of me because people aren’t always patient or supportive when they don’t understand the significant impact it has every hour of every day.
In order to be diagnosed with OCD, it has to be something that causes significant distress or impairment in your life. People with OCD have unwanted, intrusive thoughts, known as obsessions. The anxiety the obsessions cause leads to compulsions, which can be either physical acts, like washing your hands, or mental acts, like ruminating or repeating words/phrases in your head, to try to relieve the anxiety. This then creates a vicious cycle, going from obsession to anxiety to compulsion to relief and back around again, which feels impossible to break at times. Obsessions and/or compulsions have to take up an hour of your daily life for you to be diagnosed with the disorder. It’s also important to note that OCD is a lifelong condition and is not something that will ever go away or be cured, only treated. It’s still not really known if it’s a nature vs. nurture thing, but in my case, I think it’s a combination of both, as I have at least one extended family member with it but also think there’s an environmental side to it from early childhood experiences, such as illnesses.
I’ve known I have OCD for decades, but I didn’t tell most people about it until recent years when it started to affect me more. I first disclosed it publicly on my entertainment blog a few years ago about it after seeing a stand-up show by a comedian with OCD, but I’ve since made the post private because that wasn’t the appropriate place for it. In the interest of full disclosure, I have never been formally diagnosed with OCD, as the focus is more on treatment than the diagnosis, and I’ve never had a private assessment. However, when I finally sought support from my GP a few years ago during what was probably the worst episode of my life, they agreed that I likely had it. We agreed not to try medication at that time, and I still haven’t taken any, but they told me to refer myself to a local place that does talking therapy through the NHS. The place I referred myself to must have also been very concerned because I was contacted within a couple of days of my referral. I was initially offered self-led online cognitive behavioural therapy where I had weekly check-ins with a support worker for six weeks or so. At the end of that, my support worker was still concerned about my OCD scores being very high/severe. They referred me to therapy with an actual therapist where I was again contacted very quickly for online instant message sessions to do more exposure response prevention. Again, I started those therapy sessions very quickly (within a few weeks), and maxed out the number of sessions I could have under the NHS. The therapy was mostly useful at the time, but when you don’t have someone checking up on you every week after it ends, it can be easy to fall back into some things.
I have a lot of different ‘themes’ (subtypes) of OCD, which have evolved over the years, but I won’t talk about everything to save this from becoming a dissertation since we already know I’m not into the whole brevity thing. I also know that there could be other people reading this who have OCD, and although it is always helpful to know you’re not alone, I’m mindful that talking/hearing about it can be a trigger. As my blogs are pretty much always introspective and personal, this is less about the stuff you can look up online about OCD and is, as the title says, more about my own journey with it and how it’s manifested over the decades I’ve had it.
One of the first signs I ever had of OCD was magical thinking, which is the belief that unrelated events are connected because of thoughts or actions and that they can influence other events. When I was around five or six, I would always see ads on TV for St Jude Children’s Research Hospital where they showed children who had lost their hair from cancer. My six-year-old mind then assumed that everyone with little or no hair had cancer, and I was terrified of getting it. At that time, the R.E.M. song “Losing My Religion” was constantly on MTV back when they actually played music. Michael Stipe didn’t have much hair back then, so I thought he had cancer. This caused me to have magical thinking that if I listened to that song (and only that song for some reason, which is lucky for me because “At My Most Beautiful” and “Nightswimming” are two of my all-time favourite songs) after 7pm, I would get cancer. Sounds silly, right? Not to someone with OCD. I would love to say that I’m completely over that particular magical thinking because logically, I do know it’s ridiculous, but the point of OCD is that it’s not logical. There’s always that question of But what if…?. OCD can cause avoidance, and to this day, I still avoid listening to that great song after 7pm ‘just in case.’ I have pretty bad health OCD as it is, which is exactly what it sounds like, and I have to be careful about anything that can trigger it, such as reading things online about any illnesses or people who have them.
My magical thinking has, unfortunately, continued with my other interests in recent years. When Arsenal or England play, I have a sort of reverse psychology compulsion to say, “We’re going to lose,” something I have done since I was a student when I would say, “I’m going to fail” before an exam. It’s not that I don’t have faith in my teams – quite the opposite – or that I’m being pessimistic. I don’t do it to be annoying either. My stupid magical thinking tells me that if I don’t say it, it will happen. It’s something I feel like I have to do just in case it influences the outcome in some weird, cosmic way, and I get too anxious if I don’t do it. The same applies to pre-game rituals (listening to specific playlists) or when I can’t go back to a pub for the rest of the season because we lost a game when I watched it there, when I have to go months before I can wear whatever Arsenal shirt I was wearing when we lost a game, and not having dessert to celebrate winning until the full-time whistle is blown. Footballers have superstitions, and I’ve been told that many of them will throw out their boots when they lose a game and will wear them to the next one if they score and win. I talked to my former therapist about all of this and asked whether these things constitute magical thinking or just superstitions for me. She confirmed that because of the level of distress they cause, they are indeed magical thinking. Obviously losing a football game is a low stakes thing, but it’s one of my more common magical thinking things because my teams play several times a week. Also, similar to my compulsion of saying that we’re going to lose, I sometimes read or hear a random phrase that I get in my head as an earworm and can’t stop thinking about it until I say it, though this is fairly rare and isn’t magical thinking.
My “Losing My Religion” magical thinking was the main OCD theme in my early years, but in my teenage years, it shifted and started to become more severe. I’m not sure if it was puberty, school stress, significant life changes that I struggled to cope with, world events, or whatever else, but I can remember it being out of control and being acknowledged more in my family. Unfortunately, things were different back then, so we really didn’t know that there was treatment for it. My OCD manifested in various ways in my teens. I had trichotillomania and would pull out my eyelashes, though as with several of my subtypes and compulsions, I didn’t actually know until about three years ago that this was an OCD thing. I still do it sometimes if I’m extremely stressed, but it’s quite rare now. There’s also something called ‘just right’ OCD, and I would have to (and still do have to) have volumes on even numbers or multiples of five because that was the only way that felt just right. Another ‘just right’ thing I did was rewrite envelopes multiple times. Hoarding isn’t really considered OCD anymore because it’s seen as its own thing now, but I would keep bottle caps from my favourite drink (they had jokes on them) and receipts in a container for years. Some of the receipts were kept for sentimental reasons, like remembering the day I bought an album, but I even kept ones from fast food places that I knew I would never want or need again. One of the main things back then was using paper plates, plastic cups, and plastic cutlery. (Sorry, Mother Earth!) I don’t really think I had contamination OCD as a teen, but I didn’t trust that the dishwasher would properly clean dishes and would inspect them at restaurants. I’m not sure when I stopped using the paper and plastic stuff, but apparently I did the same thing when I first moved to England. I completely forgot about it until I was discussing my OCD with my best friend once at the start of the bad episode a few years ago. She told me she didn’t realise I had it before (We can be great at hiding it when we’re with other people!), but then she remembered that I used disposable things when I lived in York. Admittedly, I am still prone to doing this sometimes if I’m not at home where I can wash my dishes myself.
From what I remember of my 20s, my OCD wasn’t quite as bad as it was in my teens. I definitely still had some signs of it, but I don’t think they were quite as severe as a whole. The main one was that I was (and am) afraid getting sick, especially stomach bugs. Emetophobia goes along with the health OCD and has been a constant in my life since I was very little. It’s to the point that I can’t even see it or hear it on TV – I literally close my eyes and cover my ears at the sight/sound of it. Like trichotillomania, I didn’t know that emetophobia was an OCD thing until a couple of years ago, but it makes a lot of sense. (There’s a great episode of John Robins’ How Do You Cope? podcast with actor Tuppence Middleton about OCD and emetophobia that explains it more, and she also wrote a book about it.) As you can imagine, it probably wasn’t the best idea to work in nursing homes in my 20s, but I somehow managed it for four years. Still, I remember that when everyone in the office got a stomach bug once around 2013, I wore a mask (before it was cool!) to try to avoid it. I got laughed at by my colleagues, but I was also the only one who didn’t get it, which only reinforced the idea that this was what needed to be done to prevent getting sick. Alongside that, since I was a young teenager, I would always suck on mints because I somehow thought that it would stop me from getting sick. Many people know I am addicted to mints, and that was the start of it – it’s actually a compulsion that was/is at least partly related to that obsession and phobia.
My early 30s were mostly fine, apart from some of the usual themes turning up. I think I did surprisingly well in South Korea, but personal and world events later in my 30s started causing issues again. First, I had a physically and mentally traumatic knee injury in 2017, which I’ll get more into later. Then COVID happened. When COVID started, I was working insane hours at an already very stressful job where I had some particularly difficult cases that at one point genuinely made me want to do a runner overnight and return to the US. Stress can exacerbate OCD, and between COVID and my job, a relapse was bound to happen. COVID was unavoidable in the news and group chats. It caused me a lot of distress, especially with my health OCD, and made me lose respect for people who weren’t taking it seriously and following the rules. I became obsessed with it, frequently checking the numbers of people dying. I’ve also always struggled working in an office because people would always go in sick. I’ve always been afraid of getting anything anyone else has (and am never convinced when someone tells me they’re not contagious), but COVID made that even worse. Whenever I had to go into the office at my old job, I had sensory overload and became distressed because I was constantly listening for coughing or other COVID symptoms. I eventually left that job and continued to struggle when I had to go into the office for my current job because I was (and am) hyperaware of anyone coughing or sneezing anywhere I go. Not to mention that I was doing home visits at the time, and the homes were not always the nicest places. Thankfully, when my role changed, I got to work from home more, and now I don’t do home visits at all anymore.
The bad OCD episode (which I should really start calling ‘O.C.D.O.D.’ after the new Hives song) came a few years ago during a particularly stressful move and period in my life. I won’t get into all of the details of all of the causes, but the relapse happened suddenly and was severe almost instantly. I quickly reached the point where I knew I needed professional help – something that I had never had before – and finally got the aforementioned therapy. During this period, I had severe contamination OCD, alongside my health OCD. I was also doing a lot of ruminating, which kept me up at night and is still a significant issue to this day. I thought everything would calm down once I was moved and settled in my place, but shortly after I moved into my flat, I noticed in the middle of the work day that the sofa was dirty and proceeded to clean it four different ways. The compulsions escalated from there and continue to this day. If something falls on the floor, I have to wash my hands after I pick it up. I have wet wipes everywhere and use them all the time, including if someone touches my phone, and I have to wash my hands after using them. Every time I leave my flat, everything is planned carefully in terms of touching things. Anytime I’m preparing food, touching bins, opening packages, touching doorknobs to leave my flat/building (I usually try to use the inside of a bag or jacket), pressing any buttons (knuckles come in handy), or hanging up wet laundry, my hands get washed several times or at least sanitised until I can wash them. You can always tell when I’m struggling the most in this area, particularly in winter (when my OCD is usually worse because people are always ill), because it gets to the point that my hands crack and bleed. I moisturise my hands every time after I wash them, but they still get so dry. I knew it was bad when my nephew asked me once why I washed my hands so much, and he wasn’t even five at the time. I also brush my teeth after every meal when I’m at home, which means I can brush them three or four, sometimes even five, times a day on a weekday when I’m at home more and eat more.
Since that episode, I’ve had even more difficulty working in an office because I get so distracted and distressed the second anyone coughs or sneezes or says they feel ill in any way. When the episode started, it didn’t take long for me to disclose everything to my manager, who was and remains incredibly supportive. She agreed to let me continue working from home and only come in for certain meetings, as recommended by occupational health at work. This has been helpful, but I still get a lot of anxiety whenever I have to go into the office for a meeting, especially if I have to eat in the office for a working lunch (something I’m completely against, even without OCD!) because there are a lot of doorknobs between the nearest sink and the meeting room where we eat. If I have to be there for a full day, I book a room to myself and wipe everything down with the wipes I bring with me everywhere. It also affects my work itself. I work indirectly with children with special educational needs and disabilities, and some of them have OCD. When possible, they get allocated to my colleague (who is not aware of my OCD, though I have told a couple of colleagues about it) because it triggers mine when they have similar themes. Fortunately, even though I struggle with working in an office for hours at a time, I haven’t become agoraphobic. I still go out to concerts, comedy, football games, and anywhere else I want, but there’s a lot of mental preparation involved to go anywhere and a lot of compulsions that happen along with it. Unfortunately, because I still do these things, it makes some people, like another manager, doubt that I have OCD because they don’t see how going to a stand-up show where I’m distracted by laughs (but still distracted and distressed by any coughing/sneezing) is different than being in an office. This doesn’t help when OCD is already called the ‘doubting disorder,’ and there are themes where you worry that you don’t really have it.
I also struggle a lot on public transportation because of both the fear of falling and injuring myself, like I did with my knee when I fell on the tube, and because of people coughing, sneezing, and touching things. During busy times or whenever I am alone, I always go all the way to one end of the tube to try to ensure that I’ll be able to sit down, thereby reducing the risks of falling and of having to touch things.
One of my biggest annoyances as someone with OCD is when people online make jokes like “They let their intrusive thoughts win” whenever someone shaves their head or does something silly. Things like that are impulsive thoughts, not intrusive thoughts. Intrusive thoughts can cause significant distress and are the opposite of what someone wants to do. It’s unlikely that a person with OCD would ever act on their intrusive thoughts because it goes against their values. An impulsive thought would probably be more like, “I want to push the emergency button at the train/tube station” or “I want to throw this bottle on the tracks.” An intrusive thought (one I have but haven’t really talked about with most people) is “What if I jump or push someone on the tracks?” Intrusive thoughts like this can lead to compulsions to avoid it, such as going to the end of the platform where there are fewer people.
As you can tell from everything I’ve written, OCD is not something that’s ever easy, and it impacts your daily life. I made a decision not to date much because I don’t want to be a burden on anyone, even though I know that it is annoying to my family and friends. I also don’t have kids because there’s a higher chance that they could get it, and I wouldn’t wish it on anyone. My OCD is also a large part of the reason I live alone – living with other people doesn’t really work for me. I’ve lived with people before with different standards of living, and it doesn’t work. I’m well aware that it’s also a burden on the people closest to me. My family are usually understanding of it, even though it can be frustrating for them Most of my friends who have cared enough to talk to me about it and ask questions (which I’m always happy to answer) are also understanding. I do need a lot of reassurance, which is another theme of OCD, and I know it can be difficult for my friends and family to know how to manage that, but I do appreciate them trying. Unfortunately, there is still a lot of stigma and a lot of people who don’t care to learn more about it or how it affects the person who has it. It can cause friction in relationships because it’s an annoying thing by default. It’s extremely rare that it’s really affected my relationships, and I’m usually very good at maintaining relationships for decades. However, this is more difficult when the person with OCD is unable to stop the compulsions, and people don’t understand or even notice/care how much you’re struggling. People with OCD know it’s frustrating for the people around us, and all I can really say is that however frustrating it is for people who are exposed to it, it’s 1000 times more frustrating on a constant basis for the people who have it. OCD can be extremely isolating and depressing when you can tell that people don’t care that you’re struggling or tell you off for something you desperately want to control but can’t. It’s hard to feel accepted when you have people getting annoyed at you, which only increases the anxiety. You shouldn’t enable someone’s anxiety, but you also shouldn’t make them feel worse about it. We typically don’t even want you to do anything for us; we just want some patience and understanding. Telling us it’s in our heads (we know) or to ‘just stop’ (we can’t) doesn’t help and only makes us feel worse than the obsessions and compulsions already do. If you want to know what to say and what not to say to someone with OCD or want to know how to support them, I recommend checking out this article.
I hope this gives a better picture of what OCD is and isn’t and how draining and debilitating it can be. As you can see, the themes, manifestations, and severity can change over the years, but it’s something that is always with the person who has it. I can’t speak for everyone who has it, but if I were granted a wish, it would be to get rid of it – for me and for everyone else who suffers from it. Obviously that’s not realistic, and I know that it’s something that will always be part of my life and who I am. It’s something I struggle with on a daily – even hourly – basis. I’ve talked about it here and there before and have always been open about it when it’s come up, but few people are aware of the degree of it or of all of the obsessions and compulsions. There are a number that I haven’t even covered here, as well as some of my healthy (music and comedy) and unhealthy (maladaptive daydreaming) coping mechanisms. It’s also important to note that OCD presents differently in everyone. There are so many different OCD themes/subtypes, and just because one person has a subtype, it doesn’t mean everyone does. For instance, contrary to popular belief, not everyone has contamination OCD. If someone you know has it, the best thing you can do is be there for them, even when it’s frustrating, and listen to try to understand them and how it affects them. I would guess that most people with OCD would be willing to talk about it and answer any questions people have if it meant that they could be understood and accepted, which is all we really want. There’s still a long way to go towards educating people about it, but I hope this incredibly (scary!) personal post has helped with that a bit.















































